What is it like to die?

Caring for someone who is dying can be frightening on so many levels.

As if having to deal with unfamiliar practicalities, exhaustion, and anticipatory grief isn’t enough, fear of how the actual death might play itself out can be debilitating.

It’s always difficult to know exactly when to call people in to say good-bye. Recognising the signs of impending death helps with deciding when to let family and close friends know that the end is near. Having a chance to say our farewells, give thanks, and offer or ask for forgiveness is incredibly important and helps enormously with the grieving process, whether the patient is alert or not. Important too during this difficult time is having the comfort and support of loved ones.

The act of dying is not always as awful as we might imagine. If you’re caring for a loved one close to end of life, this little video is a helpful tool to recognise the signs of impending death.

What to Expect When Your Loved One Is Dying

“Each person’s journey to death is unique. Some people have a very gradual decline; others will fade quickly.

As death approaches, your role is to be present, provide comfort, and reassure your loved one with soothing words and actions that help maintain their comfort and dignity.

Hospice Care

When your loved one’s health care team recognizes that they are likely within 6 months of dying, they may recommend switching to hospice, a more specialized care for people with a terminal illness who are expected to die.

Your loved one will still get treatment for pain relief and comfort, but hospice also offers emotional and spiritual support for them as well as you and close family.

Signs That Death Is Near

There are changes you can expect to see as an adult body stops working. These are a normal part of dying.

Children and teens have a similar process, but it can be harder to predict. They often stay fairly active and continue to ask a lot of tough-to-answer questions.

1 to 3 months before death, your loved one is likely to:

  • Sleep or doze more
  • Eat and drink less
  • Withdraw from people and stop doing things they used to enjoy
  • Talk less (but if they’re a child, more)

1 to 2 weeks before death, the person may feel tired and drained all the time, so much that they don’t leave their bed. They could have:

  • Different sleep-wake patterns
  • Little appetite and thirst
  • Fewer and smaller bowel movements and less pee
  • More pain
  • Changes in blood pressure, breathing, and heart rate
  • Body temperature ups and downs that may leave their skin cool, warm, moist, or pale
  • Congested breathing from the buildup in the back of their throat
  • Confusion or seem to be in a daze

Breathing trouble can be distressing for family members, but often it isn’t painful and can be managed. Pain can be treated, too. But your loved one may have a hard time taking medicine by mouth.

Hallucinations and visions, especially of long-gone loved ones, can be comforting. If seeing and talking to someone who isn’t there makes the person who’s dying happier, you don’t need to try to convince them that they aren’t real. It may upset them and make them argue and fight with you.

When death is within days or hours, your loved one may:

  • Not want food or drink
  • Stop peeing and having bowel movements
  • Grimace, groan, or scowl from pain

You may notice their:

  • Eyes tear or glaze over
  • Pulse and heartbeat are irregular or hard to feel or hear
  • Body temperature drops
  • Skin on their knees, feet, and hands turns a mottled bluish-purple (often in the last 24 hours)
  • Breathing is interrupted by gasping and slows until it stops entirely

If they’re not already unconscious, your loved one may drift in and out. But they probably can still hear and feel.

At the End

In the last days or hours, your loved one may become restless and confused and have hallucinations so upsetting they may cry out, strike out, or try to climb out of bed. Stay with them. Try to keep them calm with soothing music and gentle touch. Sometimes medication helps.

The room should be well lit, but not bright. Make it as quiet and peaceful as possible. Constantly assure them that you’re there.

Ironically, a loved one may also become clear-headed in their final hours.

When to Say Good-bye

One of the hardest decisions is when to call in people to say good-bye and to make memories for the future.

Let family members and close friends know as soon as it’s obvious that death is near. The care team can help you all prepare for what’s coming, both what will happen to your loved one and your own physical and emotional reactions. Being together allows family members to support each other, too.

Even though you’ve gathered, don’t assume it means you’ll be there at the end. Often the person doesn’t die until those who sat with them for hours have left, as if they were unable to let go while the ones they loved were there.”

The above is a full extract from this article: https://www.webmd.com/palliative-care/journeys-end-active-dying#1

Stained glass window in the German Church in Stockholm.